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beansideIt's Wednesday! We're halfway through the week!
Dad Status: Horrible, but still alive. More info under the .
He's definitely dying, but in the meantime, everything is horrible and traumatic. The hospice turned him down again, stating that he could do home hospice. Except that we told them that due to physical limitations, it would not be safe for him. He's 260lbs, and there is no way we could move him to clean him or provide for him. Also, he needs seizure medication, and we can't do IV meds at home. We were also told that the reason for it is that he doesn't need the level of medication. This is because, despite fucking Ghilchrist (aka hospice #2) telling them exactly what they need to do, the hospital is not doing it. I'm so incandescently angry.
Jess went to the hospital in the morning, and things were pretty bad. His lungs are super congested and he's gurgling with pretty much every breath, because he's not strong enough to cough to clear his lungs. It sounds like he's drowning miles from water. They highly suggested that my sister and I go visit in the evening, just in case.
It was horrible. When we went in, he asked if we'd found his coat. Once I understood and my sister agreed that we'd found it, he said we should put him in the car. We told him that we couldn't and he needed to rest. He replied that it "sucks." And that he is feeling "shitty." That was the extent of his conversation for the night. We stayed long enough to ask the nurse for something for him, and they gave him a nice shot of morphine, and he drifted off into a drugged haze, which is better than him knowing what's going on.
My sister spoke with his social worker, and asked her to try Stella Maris Hospice(aka Hospice #3) and late in the day we got a call from them saying that they felt that he was not being medicated correctly and that they would be more than happy to rectify that. So he's got a hospice, but sadly won't be moved til today.
I don't know how long he has. I really hope it's soon. Ideally, it would be hospice, where they would know how to keep him from suffering. This just has been a nightmare. It's not like this wouldn't be stressful and shitty even if everything was smooth, but the added bullshit is just stretching us all thin. Hopefully, we can get him settled in hospice #3 tomorrow, but the way things have been going, I have not clue.
All in all, I cannot recommend adulthood. This is bullshit. We're kinder to our animals than to people. Honestly, if the hospital were to give him a bit of extra morphine to speed things up, I'd cheer and slip the nurse $100.
Hopefully, soon there will be other things that will not be all consuming of my day. I'm both pathetically grateful to have work to keep my mind off things, and resentful that they're taking time from my day that I could be...I dunno, stressing?
My sister drives me insane, but she has been amazing the last few weeks. She's been dealing with all the doctors and social workers as his power of attorney. When this is over, we're going to go out to celebrate the release from stress and his life.
Okay, going to stop rambling and go get myself together. Everyone have a wonderful Wednesday!
Dad Status: Horrible, but still alive. More info under the .
He's definitely dying, but in the meantime, everything is horrible and traumatic. The hospice turned him down again, stating that he could do home hospice. Except that we told them that due to physical limitations, it would not be safe for him. He's 260lbs, and there is no way we could move him to clean him or provide for him. Also, he needs seizure medication, and we can't do IV meds at home. We were also told that the reason for it is that he doesn't need the level of medication. This is because, despite fucking Ghilchrist (aka hospice #2) telling them exactly what they need to do, the hospital is not doing it. I'm so incandescently angry.
Jess went to the hospital in the morning, and things were pretty bad. His lungs are super congested and he's gurgling with pretty much every breath, because he's not strong enough to cough to clear his lungs. It sounds like he's drowning miles from water. They highly suggested that my sister and I go visit in the evening, just in case.
It was horrible. When we went in, he asked if we'd found his coat. Once I understood and my sister agreed that we'd found it, he said we should put him in the car. We told him that we couldn't and he needed to rest. He replied that it "sucks." And that he is feeling "shitty." That was the extent of his conversation for the night. We stayed long enough to ask the nurse for something for him, and they gave him a nice shot of morphine, and he drifted off into a drugged haze, which is better than him knowing what's going on.
My sister spoke with his social worker, and asked her to try Stella Maris Hospice(aka Hospice #3) and late in the day we got a call from them saying that they felt that he was not being medicated correctly and that they would be more than happy to rectify that. So he's got a hospice, but sadly won't be moved til today.
I don't know how long he has. I really hope it's soon. Ideally, it would be hospice, where they would know how to keep him from suffering. This just has been a nightmare. It's not like this wouldn't be stressful and shitty even if everything was smooth, but the added bullshit is just stretching us all thin. Hopefully, we can get him settled in hospice #3 tomorrow, but the way things have been going, I have not clue.
All in all, I cannot recommend adulthood. This is bullshit. We're kinder to our animals than to people. Honestly, if the hospital were to give him a bit of extra morphine to speed things up, I'd cheer and slip the nurse $100.
Hopefully, soon there will be other things that will not be all consuming of my day. I'm both pathetically grateful to have work to keep my mind off things, and resentful that they're taking time from my day that I could be...I dunno, stressing?
My sister drives me insane, but she has been amazing the last few weeks. She's been dealing with all the doctors and social workers as his power of attorney. When this is over, we're going to go out to celebrate the release from stress and his life.
Okay, going to stop rambling and go get myself together. Everyone have a wonderful Wednesday!
no subject
Date: 2024-08-28 10:52 am (UTC)I very much hope you get your dad into Hospice #3 with a smooth transfer - they sound like good and competent people.
no subject
Date: 2024-08-28 11:13 am (UTC)no subject
Date: 2024-08-28 11:27 am (UTC)no subject
Date: 2024-08-28 03:36 pm (UTC)I'm thinking of you & Jess, and your sister